Avery has to drink a medical formula every day to maintain the right amount of phenylalanine. The amount that she needs changes about every week or two so one week she'll need 4 oz. a day, then 5 then 7.5.... it just depends on what her phenylalanine levels are.
So the point of this is to say that she gets a varied amount of formula in bottles and the rest of the day she is breastfed. But all the diet changes have taken a toll on my milk supply and folks, I think I'm drying up over here. It's like it happened overnight. We saw the pediatrician Friday and because Avery is not gaining weight properly, he recommended I quit breastfeeding altogether and go to formula. But to him I roll my eyes and say "But dude, this baby has PKU and it is much more complicated than that." And then I called Avery's dietitian who fixes problems like these. My boobs must be on the pediatrician's side because they've up and quit on me and my baby is hungry! So now I have to mix medical formula with regular baby formula like Similac to make up for my lacking lactation.
In the meantime, I'm doing everything I can to increase the milk supply up in here. I've dedicated my free time to making up cheers for the boobs and thinking happy thoughts. I invested a small fortune in herbal remedies and oatmeal and drank as much water as I could handle. If I can locate flax seed meal and brewer's yeast, I'm making lactation cookies.
I am determined to fight this because if I have to quit breastfeeding because of PKU I'm going to be pissed. If it was for any other reason, I don't think I would care so much but I want to be better than PKU and right now that means breastfeeding even though it freaking sucks.